Update on CIs

Well we went back to Iowa City today for another mapping. We went from 25 pulse width to 300. BIG jump. They said it is very rare that they turn them up that soon. The highest they can go is 400 so if we don't see anything at 300 within a week we go back for an X-Ray to make sure the implants are still in the correct spot. If they are then we can move it up a little more and if there is still no response than that's it. However they did think they got more of a nerve response today from the right side, still nothing on the left. But it's a start. They also said that they have had kids before who have taken a couple weeks to show a nerve response because it is so new their brain doesn't know how to process it. For those kids it ended up working fine and they are really benefiting frrom their implants so hopefully this is the case with Lanibug as well. That is about the only update we have. Still no definite answers but its a start.

Summer!

We have been having a blast this summer! Lani is getting bigger (and I mean heavier) every day! I cannot wait until she can crawl so I don't have to lug her around everywhere! And she absolutely LOVES the water! She never wants to get out of the pool. Even the big pool she will just swim around with me for hours if I let her. We go back this thursday to Iowa City for another mapping of her CIs. Hopefully we at least get some answers this time. I contacted Cochlear to see if they would send a rep out but have not heard back from them yet. I would just like to know which direction we are going so I can do what I need to do. On a brighter note, the ASL I took in college is starting to come back to me now that I am trying to use it more. Now I just need to learn how to sign in sentences again! 

Our 1st blog!

Well, Lani is 14 almost 15 months old so a lot has happened! I can't beleive she is over a year old now! Here is a couple birthday pictures.





She is still undiagnosed and nobody can tell us anything. She did have a major accomplishment last month. She learned to sit up all by herself! We are so proud of her. Now she just needs to learn to crawl : )  Lani got bilateral cochlear implants on June 4th. The surgery went perfectly, recovery did not. Poor baby was puking up blood everywhere and we almost didn't get discharged. But we did go home and the next day she was fine. Here are some before and after pics.







After surgery they did tell us that there was no auditory nerve response but that is sometimes normal and not to worry. We would see if they worked on activation day. Activation was June 30th and still no nerve response :( We go back on the 15th to test them again but they are probably not going to work. So huge bummer. I'm ok with her being deaf and never being able to hear, it's putting her through surgery for nothing that bugs me.
Well this is a pretty long post for our first one so I think I will be done for now. Just an update on where we are!