She is still undiagnosed and nobody can tell us anything. She did have a major accomplishment last month. She learned to sit up all by herself! We are so proud of her. Now she just needs to learn to crawl : ) Lani got bilateral cochlear implants on June 4th. The surgery went perfectly, recovery did not. Poor baby was puking up blood everywhere and we almost didn't get discharged. But we did go home and the next day she was fine. Here are some before and after pics.
After surgery they did tell us that there was no auditory nerve response but that is sometimes normal and not to worry. We would see if they worked on activation day. Activation was June 30th and still no nerve response :( We go back on the 15th to test them again but they are probably not going to work. So huge bummer. I'm ok with her being deaf and never being able to hear, it's putting her through surgery for nothing that bugs me.
Well this is a pretty long post for our first one so I think I will be done for now. Just an update on where we are!
No comments:
Post a Comment